{"id":4566,"date":"2014-02-24T06:00:14","date_gmt":"2014-02-24T14:00:14","guid":{"rendered":"https:\/\/www.bepreparedperiod.com\/blog\/?p=4566"},"modified":"2021-09-02T10:20:09","modified_gmt":"2021-09-02T10:20:09","slug":"still-on-road-to-recovery-due-to-endo","status":"publish","type":"post","link":"https:\/\/www.bepreparedperiod.com\/blog\/still-on-road-to-recovery-due-to-endo\/","title":{"rendered":"Still On Road to Recovery Due to ENDO"},"content":{"rendered":"

By Shirley<\/p>\n

\"Shirley\"<\/a>I was diagnosed with endometriosis<\/a> in October 2012, at the age of 45 after over 10-years of being diagnosed with poly-ovarian cysts. My last ultrasound in 2012 was identical to my ultrasound from 2007. Ultrasounds do not show endometriosis!<\/p>\n

I was fortunate and blessed because I did not have horrible pelvic pain for the last 15 plus years, even though I had cysts on both ovaries. I endured no pelvic pain on or off my periods during these years, but what I did have was flooding & large clots (larger than a half-dollar) while on my period. The first three days of my period may of included accidents even with the use of a super tampon every 30 minutes plus a night time maxi pad. I was anemic and lethargic. The last year prior to this diagnosis I had low-low back pain, uncomfortableness while lying down, and sciatic leg pain to the point of limping on my left leg.<\/p>\n

After my endometriosis<\/a> diagnosis, I was informed that my only option was a total hysterectomy including the removal of my ovaries. I was very blessed and had two beautiful girls in my early twenties.<\/p>\n

On March 5, 2013, I had a robotic assisted total laparoscopic hysterectomy, removal of both ovaries & endometriomas, extensive lysis of dense pelvic adhesions, cystoscopy, & flexible sigmoidoscopy. My rectum was dissected from my uterus. The right & left ovary had to be freed up from the side of the rectum. The uterus had to be un-adhered to the sigmoid colon and the rectum. Thank goodness there was no injury to my rectal wall. This surgery was 5 hours with two surgeons and one assistant surgeon.<\/p>\n

The next 5 months after my hysterectomy were awesome! I had NO back pain.<\/p>\n

Then the pain slowly started again in my low back on August 2013. I was referred to physical therapy. Shortly after beginning PT I was diagnosed with prolapse vaginal vault after hysterectomy, bladder, stress incontinence, and rectum with a referral to a Urogynecologist.<\/p>\n

As of today, I am suffering with pain in the back side of my left hip, low-low back pain, left leg sciatica pain, and low left sided pelvic pain. I have the diagnosis of ovarian remnant syndrome, which is a piece of ovary remaining in my pelvic area. Surgery is needed to correct the prolapse of the bladder, vaginal vault, rectum, and removal of adhesions & ovary remnant.<\/p>\n

If there is one thing I could change and known in hindsight,  it would have been to ask for exploratory laparoscopic surgery when I was in my 30s. (This is the only way Endo can be confirmed.) Please see a doctor (who understands Endo) when you have a super heavy flo “flooding” and keep asking for answers.<\/p>\n

We must write, talk, and share\u2026 Endo warrior!<\/p>\n

Shirley<\/p>\n

 <\/p>\n

Do you have a story to share? We\u2019d love to feature you in our Endometriosis Awareness Campaign! Share your story, \u201chere<\/a>.\u201d<\/strong><\/em><\/div>\n
<\/div>\n

 <\/p>\n

Special Event Invite:<\/strong><\/div>\n
\n

Join us March 14th (11am PST) for a special tweet chat to raise Endometriosis Awareness.<\/strong><\/p>\n

The topic: Endometriosis: The Invisible Disease and the Women Who Suffer. Click here<\/a>, for details.<\/strong><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

By Shirley I was diagnosed with endometriosis in October 2012, at the age of 45 after over 10-years of being diagnosed with poly-ovarian cysts. My last ultrasound in 2012 was identical to my ultrasound from 2007. Ultrasounds do not show endometriosis! I was fortunate and blessed because I did not have horrible pelvic pain for […]<\/p>\n","protected":false},"author":16,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1275,1],"tags":[68],"class_list":["post-4566","post","type-post","status-publish","format-standard","hentry","category-endometriosis-stories","category-periodtalk","tag-endometriosis"],"yoast_head":"\nStill On Road to Recovery Due to ENDO - Be Prepared. 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