{"id":519,"date":"2013-01-25T06:00:01","date_gmt":"2013-01-25T14:00:01","guid":{"rendered":"https:\/\/www.bepreparedperiod.com\/blog\/?p=519"},"modified":"2021-09-22T04:08:27","modified_gmt":"2021-09-22T04:08:27","slug":"endometriosis-and-relationships-a-joint-journey","status":"publish","type":"post","link":"https:\/\/www.bepreparedperiod.com\/blog\/endometriosis-and-relationships-a-joint-journey\/","title":{"rendered":"A Walk in Her Shoes: How Endometriosis Can Impact Relationships"},"content":{"rendered":"

By Arielle Denise Dance, M. A. in Women\u2019s Health<\/p>\n

In life we, as women, take many journeys: the journey through education, career decisions, through relationships and family transitions. Throughout all these journeys there has been someone (or more than one person) who has supported us, encouraged us and held our hand through the process. Some of these journeys presented obstacles and hurdles we did not exp\"Arielle<\/a>ect and made us grateful for people within our support systems.<\/p>\n

 <\/p>\n

For millions of women living with endometriosis<\/a>, the incurable and painful disease that occurs when tissue from the uterus is found in other places of the body, a new journey is required of them and their support system. This journey is unexpected for most and can cause a shift in many of their relationships, and friendships.<\/p>\n

<\/p>\n

A Walk in Her Shoes <\/em><\/strong><\/p>\n

Let\u2019s put ourselves in the position of a woman living with endometriosis. You\u2019ve recently had your first surgery that diagnosed you with endometriosis. Your parents stayed with you in the hospital and took notes on everything the doctor said. They looked up terms like \u201cendometrioma\u201d, \u201covarian cyst\u201d and \u201cinfertility\u201d. Your parents brought you home and catered to your every need; being patient as you absorbed the news of being diagnosed with a disease you weren\u2019t very familiar with. As you absorbed the reality of this disease you became overwhelmed and angry, you often misplaced your anger and geared it towards your parents. They never blamed you for this hostility but became concerned that you were not coping well.<\/p>\n

Your gynecologist recommended taking Lupron shots that put you through a menopause-like state (causing mood swings, hot flashes and a host of other side effects). You began this treatment plan, praying for a cure for an incurable disease. Your partner (boyfriend or girlfriend) has been very supportive throughout your journey (even before this pain was labeled) but because of the hormones in your medicine you are moody and bleeding irregularly. You aren\u2019t up for company tonight and wish your partner would stop being so clingy.<\/p>\n

Your best friend kept calling and asked what she can do to help you before the fall term resumes. You didn\u2019t want to hurt her feelings but you weren\u2019t in the mood to talk to anyone. You kept replaying the nights she took you to the hospital for the unexplained cramps and vomiting and the nights she\u2019d stay up with you as you cried about your pain. You were grateful for her support but then you remembered her saying \u201cIt\u2019s just cramps. Get over it, girl. We all get them.\u201d; you continued to ignore her calls.<\/p>\n

Consider: <\/em>How do your partner, parents and best friend feel— angry, frustrated, helpless? What sacrifices are they making for you–financial, emotional, time? Those around you are impacted by your actions (this is known for someone even without a chronic illness). How you treat people is very important\u2026 especially those who care about you and are willing to support you.<\/p>\n

Let\u2019s continue. You returned to school, where you are studying dramatic arts. You soon realized that your body is not quite what it used to be and you get tired quicker, experience abdominal pain when you stand for too long and have trouble focusing in class. You\u2019re worried that these new post-operative symptoms will put you behind in your school work. But what do you do? Should you tell your professors or consider taking time off? Friends and professors ask if you\u2019re alright and are concerned about the shift in your behavior. You want to talk to someone but you do not want to be judged and are not up for explaining this complicated disease to those around you.<\/p>\n

Consider<\/em>: When should you disclose to someone that you have a chronic illness? When is it necessary and when is it merely voluntary? Knowing your resources is essential. For example, on a college campus utilizing the Office of Disability Services could be your saving grace in a situation like this. Although you may not consider your disease disabling, the office can help communicate with professors for accommodations and extensions. But remember, you are not obligated to share your medical information with anyone until you feel comfortable or it is medically necessary.<\/p>\n

 <\/p>\n

\"\"<\/a>Consideration and Learning<\/em><\/strong><\/p>\n

What have we learned from this brief moment in the shoes of a woman living with endometriosis? We recognize that sharing health information is private and often takes time. Having endometriosis puts women in a constant position to educate those around her. Sometimes she will educate friends, family, strangers or even medical providers who aren\u2019t as aware of the disease. Although the discussion is difficult to have at times, speaking openly about endometriosis and pelvic pain may help someone in your life.<\/p>\n

We recognize that loved ones who support the woman with endometriosis can be impacted by the disease as well. For those in a support system there is a strong desire to help and care for the person who is suffering. Unfortunately, allowing others to take care of us and support us is something many women struggle with (even those without a chronic illness). Being able to communicate with loved ones about how you feel (physically and emotionally) can help them care for you the way you want. Let them know what hurts, how you\u2019d prefer to be cared for and let them know they are appreciated.<\/p>\n

 <\/p>\n

More Information<\/strong><\/p>\n

For a more intensive understanding on how endometriosis can impact adult relationships and family planning, see Arielle\u2019s video blog<\/a> entry on this subject. Her video blog channel is full of videos about endometriosis and various ways it impacts women\u2019s lives. This article is partly based on research Arielle has been working on and will continue.<\/p>\n

For more information on endometriosis and adolescents, consider this article <\/a>by endometriosis surgeon at the Center for Endometriosis Care. <\/p>\n

\"Endometriosis<\/a><\/strong><\/span>   
\nHelp us spread Endometriosis Awareness and grab our “Endo Button!”<\/strong><\/p>\n

Button Code:<\/strong><\/em><\/p>\n

<a href=”https:\/\/www.bepreparedperiod.com\/blog\/?p=230″><img src=”https:\/\/www.bepreparedperiod.com\/blog\/wp-content\/uploads\/2012\/03\/Endometriosis-Ribbon-Button1.jpg” alt=”” \/><\/a><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

By Arielle Denise Dance, M. A. in Women\u2019s Health In life we, as women, take many journeys: the journey through education, career decisions, through relationships and family transitions. Throughout all these journeys there has been someone (or more than one person) who has supported us, encouraged us and held our hand through the process. Some […]<\/p>\n","protected":false},"author":16,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_bbp_topic_count":0,"_bbp_reply_count":0,"_bbp_total_topic_count":0,"_bbp_total_reply_count":0,"_bbp_voice_count":0,"_bbp_anonymous_reply_count":0,"_bbp_topic_count_hidden":0,"_bbp_reply_count_hidden":0,"_bbp_forum_subforum_count":0,"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[143,1],"tags":[253,142,155,68,527,528,25,529,39,76,100,26,530,50,28,531],"class_list":["post-519","post","type-post","status-publish","format-standard","hentry","category-endometriosis-2","category-periodtalk","tag-chronic-illness","tag-endo","tag-endometrioma","tag-endometriosis","tag-endometriosis-relationships","tag-irregular-bleeding","tag-menstrual","tag-menstrual-cramps","tag-menstrual-cycle","tag-menstrual-period","tag-menstruating","tag-menstruation","tag-ovarian-cyst","tag-period","tag-periods","tag-severe-cramps"],"yoast_head":"\nHow Endometriosis Can Impact Relationships | Be Prepared Period<\/title>\n<meta name=\"description\" content=\"How Endometriosis affect the body and mind of a woman and how it can impact her relationships too. 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