What advice would you give to someone just diagnosed with endometriosis

 

So, you’ve been diagnosed with endometriosis (Or you suspect that you have it.) Now what? It can be so difficult to know where to go from here. We’re here to tell you: you’re not alone. There’s hope. You can (and will) live a happy, full life in spite of your illness. You are more than your pain.

Today’s post is the final in a series we’ve been sharing all month long on how to support women with endometriosis. Below, you’ll find advice and thoughts directly from our network of endometriosis sisters. They know how you’re feeling because they’ve experienced it too, and today they’re sharing some encouragement.

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Endometriosis - ways you've felt misunderstood or unsupported

 

Last week, we talked about all of the ways that our network of endo warriors have felt supported or loved during their battle with the disorder. Today, we’re tackling the opposite question: what are some ways that you’ve felt misunderstood or unsupported? Often times, even with the best of intentions, support systems can miss the mark when it comes to helping those in need. As a friend and supporter of those with endo, it’s important to know some of the things to avoid when caring for your loved one.

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What Are Some of the Ways That You’ve Felt Supported by Friends & Family

Endometriosis is a difficult disorder to have to deal with – physically and emotionally. If you have a loved one that has been diagnosed with endo – they need you now more than ever. But even if you’re looking for ways to support them, sometimes it can be hard to know where to start.

For Endometriosis Awareness Month, we’ve decided to reach out to our network of endo sisters for their input. Who better to lend their expert advice on endo support than women and girls that are currently battling it? We’ll be breaking down their answers into a series of blog posts designed to help the loved ones and caretakers of those with endometriosis. Together, we can make a difference in the lives and outlook for those affected by this painful disorder. Today, we’re tackling the question: What do you wish your friends and family knew about endometriosis? Keep reading for tons of valuable insight from these brave endo warriors – and check back soon as we dive into more of their responses in future blog posts.
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Does a Hysterectomy Cure Endometriosis

by Dr. Sallie Sarrel

I’m 43 and I don’t want a hysterectomy.

There has been much controversy over the claim in the media that a hysterectomy cures endometriosis.  Hysterectomy, while it has a role in treatment of pelvic pain and uterine disorders, does not cure endometriosis. For me, having a hysterectomy is a very involved decision. It is not so simple just to take the uterus because I am unable to have a child after all of endometriosis’s damage.

Being a pelvic floor physical therapist that specializes in endometriosis, I know all of the current research. I have seen patients soar after hysterectomies, and I have also seen them continue to suffer in pain and anguish. Because of my experience, I will admit that this makes me a challenging patient to work with.
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What Do You Wish Your Friends and Family Knew About Endometriosis

 

Endometriosis is a difficult disorder to have to deal with – physically and emotionally. If you have a loved one that has been diagnosed with endo – they need you now more than ever. But even if you’re looking for ways to support them, sometimes it can be hard to know where to start.

 

For Endometriosis Awareness Month, we’ve decided to reach out to our network of endo sisters for their input. Who better to lend their expert advice on endo support than women and girls that are currently battling it? We’ll be breaking down their answers into a series of blog posts designed to help the loved ones and caretakers of those with endometriosis. Together, we can make a difference in the lives and outlook for those affected by this painful disorder. Today, we’re tackling the question: What do you wish your friends and family knew about endometriosis? Keep reading for tons of valuable insight from these brave endo warriors – and check back soon as we dive into more of their responses in future blog posts.
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How_to_be_your_own_Health_Advocate

by Heather Guidone

Many facets of endometriosis continue to be hotly debated, and much is still unknown about the condition. As a result, access to quality care can prove difficult and the disease can be isolating, making it hard for affected individuals to advocate for themselves and truly feel they are being heard. Fortunately, there are a few steps we can take to navigate the journey.

When we know better, we do better. Endometriosis education is the key to making informed decisions about our care, and educating those around us can also ensure that we have allies in our journeys.

Those struggling with endometriosis can benefit from educating themselves as thoroughly as possible utilizing trusted, credible sources. Here are a few resources we recommend:Read More… >>


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Natural_Home_Remedies_for_cramps

When Aunt Flow shows up on your doorstep, often times she brings along an unwanted guest: period cramps. When PMS symptoms strike, it is all too easy to reach for the pain medication you’ve always used to alleviate those symptoms. But that trusty old bottle comes with some pretty nasty health risks, too.

We’ve talked about the things you can be doing all month long to help relieve Aunt Flow’s side effects. But what happens when you need relief, stat? Are over the counter pain pills your only option? Heck no! Read on for our top natural home remedies to relieve those pesky pains. Read More… >>


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How to survive a heavy Period

by Jackie Bolen

 

Do any of the following sound familiar to you?

  • You have to change even a jumbo tampon every couple of hours
  • You never, ever, ever wear white, or light colored pants during your period
  • You wear a nighttime pad, not only at night, but all the time
  • You can’t remember the last time you slept through an entire night during your period
  • You feel like you spend a ridiculous amount of money on disposable feminine hygiene products every single month.

 

If these things represent your life, then chances are you have what is considered a “heavy period.” You have my sympathy! It’s a tough situation and not one to be envied. However, there are a few things you can to do to survive a heavy period in style. Or, perhaps just make it a little less terrible? Onwards to the tips!Read More… >>


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Mood Swing Inducing Foods to Avoid

By Helen Sanders

If you had to name one cause of mood-swings in women, what instantly comes into your mind?

Would you be surprised if I said foods can determine the way you feel?

Believe me it’s true, what we eat can affect our hormone levels and it’s no secret they play a big part in controlling our emotions.

This can be particularly poignant at sensitive times of the month. Premenstrual syndrome (PMS) also impacts hormone levels. Feelings of anxiety, sadness, and irritability are all familiar mood-swings experienced because of this.

You may not be able to change the fact you are going to have a period, but you can control the intensity of symptoms.

I would like to share with you seven mood-swing inducing foods you should try to avoid to give you some relief and make PMS a little easier to cope with.

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Whats wrong with conventional period products

 

Tampons, pads, menstrual cups, period undies. Conventional, organic, cotton, reusable. When it comes to period products, it can be difficult to cut through the clutter and figure out the best choice for you. And more to the point, you may not even know why thinking outside the (Playtex) box is so important. Maybe you’re wondering, “What’s the big deal?” or, “Can something I only use a few days a month really impact my health?” (Spoiler alert: yes, it can.)

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